COMBINEDBrain is a registered non-profit. The organization was launched through a donation by the founder. It is now supported by membership fees, sponsorships and grants. We do not seek contributions from individuals, but instead encourage individuals to donate to our member organizations!
If you would like to become a member, you may refer to the chart below derived from the NORD sliding scales. Membership annual dues are based on your non-profit organization’s estimated gross annual revenue, or your for-profit corporation’s estimated annual budget.
The 2024 dues structure is under review. Dues will be increasing for 2024.
The value of a COMBINEDBrain membership is outlined here.
There are three classes of memberships in COMBINEDBrain:
- Patient Advocacy Groups – Organizations representing rare genetic neurodevelopmental or pediatric neurological disorders. They must be registered charities, 501c3, or represented through a fiduciary sponsor (such as Rare Village). COMBINEDBrain will not limit the number of PAGs representing a given disorder.
- Industry Advisors – For-profit organizations working to develop treatments for the types of disorders represented by PAG members.
- Individuals – Persons such as researchers, consultants or students who may attend in-person meetings and receive the newsletter, but may not participate in projects, such as the Biorepository, without PAG sponsorship.
Note: At this time, collaborating vendors such as for-profit or non-profit organizations which provide services to PAGs or Industry (CRO’s, data platforms, laboratories) may not obtain membership.