From Terry Jo Bichell via LinkedIn:

What a historic 2 days!! The very first RR-RGND launched in Arlington, Virginia on Sept 28-29 and the right people were in the room when it happened!! All the stakeholders: Industry, Patient Advocates, Clinicians, FDA, Funders, Statisticians, Psychometricians, even Payers were in the room with one problem to solve: “Is the child's life better because they took the medication? And how do we measure that?” It is a notoriously thorny problem to measure benefit in people with cognitive disability who have a hard time speaking for themselves. The historic shift was for collaboration rather than competition between all these players to help get good treatments to kids who need them. I am so proud to have worked closely with Elizabeth Berry-Kravis, Michelle Campbell Emma James Stéphane Auvin, MD, PhD, FAES Konrad J. Werhahn Kimberly Goodspeed, MD Sunitha Malepati, Charlene Son Rigby, Annie Kennedy, Berit Powers, Laura Pisani, MD, MBA, FACMG, Nicola Williamson, Robert Komorowski, Scott Demarest, Bryce Reeve, Smitha Jagadish, Rachael Hawtin and the COMBINEDBrain team to make this meeting come together. It was built on the shoulders of giants, Jacqueline French and the Epilepsy Foundation Research Roundtable for Epilepsy.