COMBINEDBrain Roadshows
COMBINEDBrain Roadshows bring professional biospecimen collection teams directly to patient conferences and community events. These events make it easier for families to contribute samples while connecting with others in their community.
Roadshows allow Patient Advocacy Groups to coordinate sample collection for their communities in a convenient, supportive setting. Collections are conducted under an Institutional Review Board–approved research protocol and coordinated with participating Patient Advocacy Groups.
Upcoming Event Locations
Upcoming Event Details
|
Hosting PAG(s) |
Dates |
Location |
Collection Site Address |
|
|
|
|
Morgan’s Wonderland Camp, 23400 Cibolo Vista, San Antonio, TX 78261 |
|
NR2F1 Foundation |
April 9th: 8am-6pm, April 10th: 8am-4pm* |
|
Sheraton Orlando Lake Buena Vista Resort, 12205 S Apopka Vineland Rd, Orlando, FL 32836 |
|
Hereditary Neuropathy Foundation |
April 17th: 8am-5pm, April 18th: 8am-3pm |
Ellicott City, MD |
Turf Valley Resort, 2700 Turf Valley Rd, Ellicott City, MD 21042 |
|
KCNT1 Epilepsy Foundation, & CDG CARE |
April 24* |
|
Hilton Orlando Lake Buena Vista - Disney Springs® Area 1751 Hotel Plaza Boulevard, Lake Buena Vista, FL 32830, US |
|
TESS Research Foundation for SLC13A5 Epilepsy |
April 30: 8am-6pm May 1: 7am-3pm** |
Menlo Park, CA** |
Sheraton Hotel - Board Room, 625 El Camino Real, Palo Alto, CA 94301, US |
|
Stiff Person Syndrome Research Foundation |
June 13-14 |
Denver, CO |
University of Colorado Anschutz Medical Campus, Denver, CO |
|
United Mitochondrial Disease Foundation |
June 18-19* |
Orlando, FL* |
Renaissance Orlando at SeaWorld, 6677 Sea Harbor Drive, Orlando, FL 32821 |
|
Mowat Wilson Syndrome Foundation |
June 25-26 |
Concord, NC |
Great Wolf Lodge, 10175 Weddington Rd, Concord, NC 28027 |
|
KDM5C KARES Foundation |
June 26-27* |
Ann Arbor, MI* |
University of Michigan, Ann Arbor, MI |
|
RARE Hope |
June 27-28* |
Boston, MA* |
The Boston Marriott Newton, 2345 Commonwealth Avenue, Newton, MA 02466 |
|
GLUT1 Deficiency Foundation |
July 14-15* |
Asheville, NC* |
Embassy Suites Downtown Asheville, 192 Haywood Street, Asheville, North Carolina, 28801 |
|
GRIN2B Foundation |
July 17** |
Bethesda, MD** |
Bethesda Marriott, 5151 Pooks Hill Rd, Bethesda, MD 20814 |
|
STXBP1 Foundation |
July 17-18 |
Philadelphia, PA |
Hilton Philadelphia at Penn's Landing, 201 S Christopher Columbus Blvd, Philadelphia, PA 19106 |
|
ZTTK SON-Shine Foundation |
July 18** |
Boston, MA** |
Boston Marriott Cambridge, 50 Broadway, Cambridge, MA 02142 |
|
YBRP, Inc |
July 20-21* |
Galveston, TX* |
TBD |
|
Cri du Chat Research Foundation |
July 24 (TBD)** |
San Antonio, TX** |
Marriott Riverwalk Hotel 889 E Market St, San Antonio, TX 78205 |
|
CTNNB1 Connect & Cure |
October 8-9 |
Boston, MA |
TBD |
|
Foundation for Hao-Fountain Syndrome |
October 9-10* |
Philadelphia, PA* |
TBD |
|
SETBP1 Society |
November 7** |
Austin, TX** |
DoubleTree Suites by Hilton Austin Downtown Capital, 303 W 15th St, Austin, TX 78701 |
|
Project CASK |
November 11** |
Houston, TX** |
Jan and Dan Duncan Neurological Research Institute at Texas Children's Hospital. 1250 Moursund St, Houston, TX 77030 |
|
SLC6A1 Connect, CURE GABA-A, & Cure SYNGAP1 |
December 3-4 |
Denver, CO |
TBD |
Contact us at biorepository@combinedbrain.org
